Wednesday, August 29, 2012

Changes

I feel like Alice in wonderland, who has fallen down the rabbit hole. I am not sure how I ended up here. Where to start? As I mentioned I continued to have shakes and fevers for 2 weeks and I wasn't sure why. Finally I found a skin infection that clued me in to the fever and shake issue. I saw my oncologist and she prescribed me an antibiotic. I returned 2 days later and it had improved but she felt I needed more antibiotics. I had just finished Cyberknife and was quite sleepy. However I was excited to return to Bellingham and spend more time with my son.

The night I returned we had a nice transition. We relaxed and took it easy.
I have been sleeping down stairs to be closer to the bathroom. I went to sleep and the chills and fever began. It was torture. Basically my temperature stayed at 102 degrees the whole night. I took tylenol. By morning I was drenched with sweat because my fever was going down. I was a mess, my body was weak and my oncologist said I should head down to the hospital. I checked in and the tests began. The fevers continued. I was a zombie for days. They narrowed it down to pneumonia, the skin infection, or a kidney issue. After a CT they were still unsure. My oncologist was on vacation so it took a little longer to make diagnosis. I was in the hospital for 16 days. I also learned that I had some tumors in my right lungs and some are pushing on some veins that are contributing to the swelling in my legs. I learned the next round of chemo will not be curative but may make me feel better. They never figured out my fevers. Even infectious disease couldn't figure it out. So I was a mystery and my fevers were labeled tumor fevers. These tumor fevers will never go away. Finally I left the hospital. I was sent home with a PCA pump attached to my port. The PCA stands for pain control analgesic. I am now walking slightly using a walker. I am at my moms in Seattle. I have home visitors coming up to 3 times a day. Helping me with walking, bathing and my PCA. I wish I could say I am feeling better. I am better since being admitted to the hospital. But for the most part I feel pretty crummy. I am trying to hang in there and work on feeling better and the fevers continue. Thank you for all the prayers and hope!!


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